The Sadie McCann Fund

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MAIN GRANT PROGRAM

Eligibility: Any family whose child has been diagnosed with Aicardi syndrome is eligible to apply. Applicant(s) must meet Financial Eligibility Guidelines and the grant funds must be used for the direct benefit of the affected child. Families whose requests are awarded will be ineligible to reapply for two years. Request Maximum: $2,000. Applications are typically reviewed three times per year. The next deadline is May 12, 2023.

 

Examples of How Funds Could Be Used: Examples of how families could use these grants include, but are not limited to: the purchase of specialized equipment (including wheelchair-accessible vehicles), home accessibility modifications, therapeutic services, respite, travel to/from the Aicardi Syndrome Family Conference, etc. When the maximum grant award cannot completely cover the costs of these items, it may be put toward the family’s out-of-pocket expenses after insurance has paid its share, or combined with individual fundraising or other grants to meet the proposed need.

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HEIDI'S HELPING HAND GRANTS

Eligibility: In memory of a dear friend and former board member, Heidi Shor, a special fund has been established to assist Aicardi families. Any family whose child has been diagnosed with Aicardi syndrome and is seeking funding specifically for therapy/companion dog training, hippotherapy/equine therapy, respite care, or increased access to outdoor spaces or activities. Applicant(s) DO NOT need to meet financial eligibility guidelines. The grant funds must be used for the direct benefit of the affected child. Families can only apply once for this special opportunity.

 

Examples of projects funded through this grant program may include dog training, hippotherapy or equine therapy sessions, backyard shade structures, accessibility to outdoor spaces, or respite care. Request Maximum: $1,000. Grants are typically reviewed on a rolling basis and applicants will receive a response within 4 weeks after submission.

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If you are seeking emergency funds due to COVID impacts, a job loss, or another emergency situation, please email info@sadiemccannfund.org. 

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