Helping families care for a child with Aicardi syndrome.
In memory of Sadie McCann, the Fund provides direct financial assistance to families living with this challenging diagnosis.
The financial needs families face can vary greatly, from a single large purchase that changes daily life to smaller expenses that add up over time.
Our impact so far
140
Families supported
$327,000
Distributed to families
In memory of Sadie
Sadie Elizabeth McCann was born on April 29, 2010 and was diagnosed with Aicardi syndrome at six weeks of age. During her short life, Sadie experienced many medical challenges, but she also brought great joy to her family and those around her.
The McCanns were blessed by help and support from many individuals and organizations. As a way to honor her memory, this Fund provides assistance to other families living with this challenging diagnosis.
Apply for a grant
Families caring for a child with Aicardi syndrome can apply for grants of up to $5,000. Applications are reviewed three times a year.
Learn about Aicardi syndrome
Aicardi syndrome is extremely rare. Read about the diagnosis from the Aicardi Syndrome Foundation.
Families helped in 2026
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Katelyn
For emergency assistance with moving expenses
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Everleigh
For an accessible vehicle
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Opal
For regenerative therapy treatment
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Ziva
For an accessible vehicle
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Haley
For music therapy, in-home care, and medical items
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Lexie
For music therapy sessions
